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Last updated: 29 December 2024 Print

Rett Syndrome : Therapy prospects

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Rett Syndrome
  • Genetics: RTT is an X-linked neurodevelopmental disorder primarily affecting females, caused by mutations in the MECP2 gene.
  • Phenotypic Variability: Includes classical and atypical forms, with overlapping features in autism spectrum disorders.
  • Challenges in Therapy:
    • High genetic and clinical variability.
    • Imperfect genotype-phenotype correlations.
    • Multifunctionality of MeCP2 protein complicates targeting.

    Current Clinical Trials and Therapies

    Past and Present Trials:

    • Completed Trials:

      • Tested agents like IGF-1, ketogenic diet, L-carnitine, and omega-3 fatty acids.
      • Most showed modest or mixed outcomes due to challenges in design and heterogeneity in participants.

      Symptomatic Management:

      • IGF-1 (Mecasermin): Positive neurobehavioral effects like reduced anxiety and apnea.
      • Sarizotan: Focuses on improving respiratory irregularities.
      • Trofinetide: Synthetic IGF-1 derivative showing promise in both adult and pediatric populations.
      • Other agents under investigation include glatiramer acetate, dextromethorphan, ketamine, and lovastatin.

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