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Last updated: 04 January 2025 Print

Emery-Dreifuss Muscular Dystrophy (EDMD)

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Emery-Dreifuss Muscular Dystrophy

Emery-Dreifuss muscular dystrophy (EDMD) is a rare, genetically diverse muscle disorder characterized by a distinct clinical presentation. It is associated with mutations in several genes, many of which encode proteins of the nuclear envelope.

Clinical Features

  • Age of Onset: Symptoms typically appear between 2–15 years but can manifest later.
  • Muscle Weakness:
    • Slowly progressive humeroperoneal muscle weakness (biceps, triceps, and peroneal muscles).
    • Early signs include ankle and elbow contractures and spinal rigidity.
    • Muscle weakness progresses slowly, with foot drop and eventual non-ambulance in 10% of patients by the third to fifth decades.

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